Clear guidance can help families feel more prepared.
Families and caregivers are an important part of hospice care. Understanding the plan, knowing who to call, and recognizing changes in symptoms can make day-to-day care easier to manage.
Families should contact the care team when symptoms change suddenly or whenever they are unsure how to follow the plan of care.
Helpful information to have ready
- Current diagnosis and recent changes.
- Medication list and known allergies.
- Treating physician and recent hospital information.
- Insurance or coverage information.
- The family’s main questions and concerns.
Practical questions to discuss with the hospice team.
Symptoms
Ask which symptoms should be reported immediately and what comfort measures can be used while waiting for guidance.
Medications
Review what each medication is for, how it should be given, and who to contact when questions arise.
Equipment
Ask how to safely use any medical equipment and who to contact if it is not working as expected.
After-Hours Help
Know the provider’s process for nights, weekends, urgent symptom changes, and time-sensitive questions.
Emotional Support
Ask what counseling, social work, spiritual support, or other family resources may be available.
Changes in Care
Discuss how the plan is updated when comfort needs, symptoms, or the caregiver situation changes.
Write down questions before calling.
A short list can make it easier to discuss eligibility, symptoms, medications, equipment, visit schedules, caregiver concerns, and what to expect next.
Talk with the provider
Contact Assistance Hospice Care, Inc. directly for information specific to a patient or family.